I wear them everywhere, in fact I wear them so much it has become how friends of mine find me in a crowd. I wear them on my head and they serve a great function of keeping my hair out of my face or calming that one unruly curl that wants to go in its own direction. More than a fashion statement, my red sunglasses with sparkly hearts on the earpieces are a vital and necessary part of my migraine coping system.
They are my light shield.
Light is such a great thing, it helps us see by bouncing off of things in our path and gives us pleasure in revealing different hues of paint splotched on canvas in breathtaking works of art. But light is also my nemesis.
I have chronic migraine. There are very few days when I am completely symptom free, most of my hours are dominated by either prodrome symptoms or postdrome symptoms, with migraine attacks in the middle.
My triggers are many and varied, which makes it difficult to anticipate or avoid them. Here is a partial list:
changes in barometric pressure
change in sleep patterns
too much sugar
too much caffeine
not enough caffeine
Mondays…just kidding, but sometimes it is hard to pin down the cause.
The strategy is to avoid as many of these triggers as possible while still living a semblance of a normal life with a job, a spouse, and three beautiful children. I exercise to increase endorphin levels which helps lessen my symptoms. I try to sleep at regular times, but I also struggle with insomnia. I keep my schedule at a bare minimum whenever possible so that if something unexpected arises I will be able to absorb it without immediate breakdown. I avoid rich desserts and high-sugar foods, but I crave sweets hardcore when I am headed toward an attack. I keep my caffeine consumption at a steady level, and regularly go completely off of caffeine for periods of time in order to prevent a dependency on it to function.
Some triggers I simply cannot avoid. I live in northeast Kansas. We have weather systems that roll through regularly that send me to bed with fatigue, dizziness, and a complete inability to keep a thought in my head. I am a mom and a pastor, which means there are times that people need me that don’t fit nicely into my schedule. Sometimes I do too much. Especially on days when I feel good.
And sometimes I eat the pizza anyway, because life is short and what is one more migraine when I am going to have one later anyway?
But I digress. I was talking about my glasses. My red sunglasses that hold my hair so nicely and go with everything I wear, who possess a secret super-power. They cover my eyes when the sun is too bright on a cloudy day. They cover my eyes when someone installed a ceiling fan under a light and I have to stay in that space but want to avoid the instant nausea and dizziness. They cover my eyes when the light is the wrong frequency or has a short and blinks randomly. They are my shield against pain when I have a migraine but I have to function anyway.
Coping where I can.